My experience with the Mirena IUD…the bad and the ugly

Mirena IUD removal

I decided to share my Mirena experience with other women so they can make an informed decision about this IUD.

My journey began a year ago when the flow of my cycle began to become unbearable.  The bleeding became so out of control that my iron levels became dangerously low. My gynecologist suggested I have a D & C, hysteroscopy and insert a Mirena IUD to reduce and/or stop the bleeding.

Call me an idiot, I research everything but for some reason I never bothered to research the Mirena. I guess I just wanted to a remedy for the bleeding.  Five of my six children were born via c-section so I am not I am not an in office procedure kinda girl so I was scheduled to be admitted into the hospital for the procedure(s) in late April of this year.

My first few months with the Mirena IUD

Fast forward – my stay in the recovery room was two hours longer than it should have been because my (normally low) blood pressure went going bonkers.  Now that I think of it that should have been an indication of what was to come.

My recovery from the procedures over the next two days was uneventful, I had a little cramping and then I was on my feet.

Two weeks after I had the Mirena put in I started having heart palpitations and sharp pains in my left breast area. I initially thought it was gas but it never moved or went away.

Over the next two months the following took place:

  • No period
  • Yucky brown discharge 2 to 3 times a week, usually lasting for a few hours and then disappearing
  • Increased heart palpitations and sharp chest pain on left side
  • Fatigue
  • Nausea
  • Breast tenderness at least once a week
  • Bloating
  • Anxiety/Panic Attacks
  • My hair was falling out

The final straw…

This week I was scheduled for my two month check up, I had already been in contact with the doctors office several times because of the heart palpitations   My doctor insisted the Mirena IUD could not be causing any of the symptoms I mentioned other than hair loss.  She insisted I schedule an appointment with my regular doctor to see what was wrong with me.

During one of my many phone calls/complaints the asked the nurse how the doctor could say the heart palpitations could not be caused by the Mirena IUD?

I asked the nurse if she thought the thousands of others on the internet with the same problem were just lying?  Her response was absolute silence.

I made up my mind that I would have the Mirena IUD removed during my two month visit. When the nurse came in to take my vitals my (usually low) blood pressure was 148/99.  Peculiar right?

The doctor came in next and said I was probably just nervous because of my exam. She said she really didn’t want me to remove the Mirena because it was working so well in stopping my excessive bleeding issue.

She asked me to see my regular doctor and if the other doctor thought the Mirena was the issue she would remove it. Like an idiot I agreed.

Later that night I awoke to chest pain, palpitations and a terrible panic attack. I managed to get through the night and decided to check my blood pressure first thing in the morning.

Guess what?  It was 164/106!  Huh?  I called my gyno and told them I needed to come in that day to have this thing removed.

The nurse told me the doctor is confident my issue had nothing to do with the Mirena and they wouldn’t be able to remove it until next week because their schedule was too busy. I told the nurse I know it is the Mirena and if I have stroke over the weekend I guess it will be their fault. After a brief hold I was given an appointment for that afternoon.

I then called my regular doctors office to explain about my heart issues and blood pressure. After the nurse asked several defining questions, she asked had anything changed in my care or lifestyle recently?

I told her I had a Mirena IUD inserted two months ago.  Her response was “that’s your problem, have you talked to your gyno”? I told her yes, and that my gyno said the Mirena is not to blame. The nurse chuckled and said “she told you that”?

The Mirena removal

Upon arrival everyone in the office was standoffish. My husband and I heard them whispering about me.  The doctor came in the room and asked if I was sure about the removal of the Mirena?

She said she really feels it’s working for me and hates to take it out.  My husband explained what the nurse at my regular doctors office said and the doctor cut him off mid sentence.

She stopped him mid sentence and said the nurse was wrong because the Mirena doesn’t do that.

Long story short, I had it removed.

After the Mirena – the long road to normal

My blood pressure was normal by nightfall. In fact 24 hours later it was 111/77 which is normal for me.

Now what is known as the “Mirena Crash” begins.

24 hours after the removal of my Mirena IUD on the positive side I felt energized.  On the negative I am still having palpitations.  I have a doctors appointment on Monday to check that out.

I awoke in the middle of the night with terrible chest pain and a horrible panic attack. Actually, it’s the worst one yet.

Oh, guess what my cycle has returned with a vengeance. In just 24 hours I’m clotting and heavy. I am grateful though, I feel like my body is trying to purge right now.

I read that it takes a while for the hormone from Mirena to get out of your system and in many cases side effects have become permanent problems.

I will keep you updated on what takes place now.  My prayer is that everything will return to normal.

If anyone is reading this and considering having the Mirena IUD put in DON’T!

There are so many woman suffering from the side effects, removal issues and permanent health issues from this device.

If you or someone has a Mirena experience please share it here, it may help someone else.

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9 Responses to My experience with the Mirena IUD…the bad and the ugly

  1. Tamara July 7, 2013 at 11:35 pm #

    Oh Lisa, this is horrible. I will be praying for your recovery. Keep us updated.

    • Lisa July 8, 2013 at 7:45 am #

      Thanks for the prayers Tamara. I’m feeling better now, so now I’m sure the Mirena was causing health issues for me.

  2. julia September 3, 2013 at 8:27 pm #

    I’m getting mine out next Thursday! i’ve had enough of my mirena iud. everytime i try to schedule an appointment to have it removed they try to tell me they will schedule an appointment for me to come in and *talk* about it. Why are they all so determined to keep it in? Wtf. I’ve had mine for a little over a year and i’m just done. I wish I would’ve found a story like yours before I got mine in.

    • Lisa November 20, 2013 at 11:36 am #

      I did the post to help others that may be having the same problem and warn anyone considering getting it to just say NO!

  3. Lauren Ray October 30, 2013 at 10:35 am #

    I myself am having problems with my IUD. I had it put in around June and I was fine until about 3 weeks ago now. Well little stuff before then but noticeable around 3 weeks ago. I have heart palpitations, this fogginess in my head, pressure also in my head. A dull headache that seems to be always lurking waiting to get stronger. Blurry vision, this back pain in the middle of my back. I started to get hot flashes, I’m 28! I’m so tired, I have a 6 year old, a 3 year old, and a almost 6 month old so I just assumed it was that but this is so different. I feel like I could just lay on the ground and fall asleep but yet when I try to go to sleep I just cant!

    I called my obgyn last week and they said they can’t get me in until Nov. 6. That would be 2 weeks. I thought I can handle it I guess. The lady told me he won’t want me to get it out and I said my husband just got snipped and I want it out I think it’s poisoning me. She didn’t say much but I know she was rolling her eyes.

    Well, yesterday which was October 29, my daughter’s 3rd birthday, my head just doesn’t feel right so I called again and they still can’t get me in, they are so booked. I thought to myself are there that many women who need their parts looked at? Anyways, I felt defeated, so I go about my day and my panic attack just keeps getting worse and worse. I call the only other clinic and told her I thought it was killing me can I please get in. She said that they are booked for at least 2 months-ARE YOU KIDDING ME. I start crying and I looked up taking it out myself I’m that desperate. Well my husband told me not to I could hurt something. So I call me regular doctor and I start to head that way for an appointment because I want to see what he thinks. I end up talking to the nurse and all I tell her is about my headache and hot flashes, not my panic attacks or anything else and I told her about my IUD. She thinks it is that and to just wait and go to my doctor 7 days from now and wait about 10 days after that to see how I feel.

    So I’m waiting, I hate this thing. I just keep telling everyone I just don’t feel normal. Something is off and I just know it is my IUD. I will drive over an hour from now on to a new OBGYN after this is out. They just brush it all aside but I know my body. I’m sorry this is all so jumbled and not neat I am just so frustrated! I am so glad you got yours out and are feeling better! I hope you feel 100% better soon!!

    • Lisa November 20, 2013 at 11:35 am #

      I’m so sorry you for the issues you have had with your Mirena. I pray you have had it removed by now. I would love to hear an update from you.

      • Lauren Ray November 20, 2013 at 3:47 pm #

        I did! I felt better right after. I think a lot of it was in my head but my headaches are pretty much gone. I still have some fogginess at times but I think some of that has to do with my sinuses. I am not as tired and all around I feel so much better! I will tell anyone and everyone to really think about getting an IUD and do research yourself! I hope you are totally better!

  4. Max November 20, 2013 at 11:06 am #

    What happened since? How long did it take for your periods to get back to normal? I took mine out for my own reasons a few hours ago. The gyno told me I didn’t need to get weaned off the hormones

    • Lisa November 20, 2013 at 11:33 am #

      I felt better almost immediately! Within one month things had returned to normal otherwise. The bleeding is even under control.

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